My mother, Judy, who passed away in 2015, suffered from Alzheimer’s Disease. Alzheimer’s and related dementias are among the fastest-growing categories of diagnoses in persons over 80 years of age. They are also among the least understood.
I was my mom’s only immediate family, so I amassed (and continue to gather) a pretty wide variety of resources that have been useful on my journey as a caregiver and advocate. This page presents some of them. I hope they can be of some assistance and encouragement. In addition, I welcome suggestions of other resources to include here
- The Alzheimer’s Association is headquartered here in Chicago. They are a great source of advice and support. Love their 24 hour hotline!
- Elderwerks is a terrific nonprofit service connecting caregivers and providers. There is no charge to the caregivers, and they seriously can save your sanity, especially at the start of your journey when you may be relatively clueless. Tamara’s my girl there — she called me within a half hour of my filling out their webform – on a Sunday. It was the first time I felt like someone had my back in this whole process.
- A geriatric care manager can be the difference between a good decision and a disastrous one. If you are trying to sort out elder care on your own, and you can afford it, having someone you can call to just make things happen in a crisis can be money very well spent. Sara White of Grey Sage is my guardian angel!
- Sunrise of Lincoln Park: my mom’s home for the last two years of her life, after I moved her from North Carolina. Love these people.